“.. a very helpful and thorough review of the ethical literature
...there is no doubt that the authors have addresses a set of questions that are pressing for the facilitation of transnational genetic research; their reflections on both the ethical and the legal issues take us deep into the difficulties of getting the regulatory environment right
...this is a particularly timely and valuable contribution to the literature.” – Roger Brownsword,
Law, Innovation and Technology
“The book … is remarkable in that it presents a complete technical and legal framework to enable researchers to build a European research infrastructure that promises further scientific advancement in the therapy or prevention of diseases.
Readers will enjoy a detailed analysis of informed consent from an ethical and legal perspective, and furthermore an excellent compendium of legal analysis concerning genetic data protection in Europe. Policy-makers, professionals, and researchers who search for a complete and elaborated critical and legal framework for genetic research in (European) transnational constellations will certainly benefit from this volume.” – Hans Christian Wilms,
European Journal of International Law, Volume 22, 2011